I can't get him out of my mind today!
Tadan Charles Foss December 2011
I got to meet him yesterday! It was everything I had expected and nothing I had anticipated! His father came to Indian Creek Community Church this week because our partners, Penwell Gabel sent him, certain that their facility would not be adequate to hold the people who will want to attend the
celebration services for Todd’s son, Tadan when he loses his battle with Vanishing White Matter, leukodstrophy.
Todd and I sat in the café at Indian Creek having met for the first time just moments earlier. He was a relaxed as any father can be while making arrangements for the passing from this life to the next by his son! He told me that Tadan had appeared to be a normal toddler until February of last year when he was diagnoised with this Vanishing White Matter Disease. The illness affects the cells of the brain. It impacts the myelin sheath, which is the fatty covering that surrounds and protects nerve cells. Damage to the sheath slows or interrupts messages between the brain and the rest of the body.
This disruption leads to problems with movement, speaking, mental and physical development and vision.
Tadan could no longer walk on his own, couldn’t use his right side and couldn’t control the function of his legs, so he loves to sit cross-legged on the couch while he “watches” his cartoons. Most of his days
have become fully occupied with watching cartoons with Carissa, his mom hanging out, available at his beck and call or mere uttering to retrieve a drink of Sprite or water.
His father loves to call him, Little Surfer Dude. He says Tadan’s full head of dark curly locks that have grown too beautifully to be on a little boy! However little Tadan knows what he wants and what he doesn’t want! And currently, he doesn’t want to have his haircut! Perhaps it is due to the fact that everyone knows that eventually his head may need to be shaved for some treatment.
His smile is big nd wide, beautiful and bountiful! His carefree, Samson-like tresses tossled in the wind frame face made for more! But Little Surfer Dude, nor any of his family had ever been to the beach! Until the Elves of Christmas Present (an anonymous Kansas City area group) found out! When they learned that the Belton, Missouri curly-headed little resident had not experienced the thrill of seeing the ocean, they were determined that had to change! So they arranged for the entire family to travel
to Myrtle Beach and they had a blast! Tadan’s mouth fell open when he saw the beach and the ocean for the first time! Carissa, his mom, scooped him up out of his wheelchair and placed himn on the sand. Carissa sat Tadan on the sand where his feet began exploring the first time they had felt sand between his toes! (See it for yourself, http://www.youtube.com/watch?v=QZOcVUPkPHU
)
“When he can’t see anymore, he will have these memories in his mind, “ said Carissa, a 32 year-old photographer who stays at home fulltime to help care for Tadan.
Todd Foss, Tadan’s father dn a general manager at Chipotle in Overland Park, Kanss said that he and his family are committed to living each day with gusto!
When you first meet him, you will never forget him, Chief Elf said. He radiates. He is so cute and he has such a great personality.”
Pain is a constant companion but you can’t tell from the Tadan that hangs out with his family. He is
spunky little fellow, said Jean Pyle, a Hospice nurse who helps care for
Tadan.
He is a 4 year old boy who has not given up, said Todd Foss, 45 year old dad.
Though Tadan is only ONE in SEVEN people in the world with the genetic condition that he has, indeed I found him to be an inspiration! He is as RARE as his Vanishing White Matter Disease!
Currently, Tadan is under hospice care at home with his mom nearly constantly at his side. No doubt the strain, grief and stress of having a terminally ill child has taken its toll on their marriage and Todd is living separtely with his mother in Shawnee. Tadan has n 11 year old sister, Paige and
a 9 year old brother, Dalton.
The family plans to donate his skin tissue and vascular muscles in hopes to help sick children. The reality of it all hits and some days they cry and some days they enjoy the simple pleasures of living and laughter.
Tadan’s condition has helped his mom and dad have a totally unique perspective and insight into Christianity and Jesus’ sacrifice on the cross. Todd said someone explained it to him with a question, woud you die for your son, Tadan? Without hesitation Todd responded enthusiastically and
passionately YES!
Well, that is what Jesus did for you! The stranger told Todd! Todd said, “He got it then!” With all of his previous understanding OR misunderstanding of God, somehow God got through!
Todd talks to Tadan bout angels and heaven! He wants him to know that he Carissa will probably not be going at the same time. In an effort to prepare this little one to go before him, Todd began to whisper to Tadan each time before he tucked him into bed at night. As a good dad, Todd believed
that it was critical that he help to encourage his son. However at the same time his heart struggled to release the precious little boy who has so delighted his life! Reassuringly, he would remind Tadan, One day Jesus will come to get you to take you to meet His Father.
Then one day it happened. Todd reminded his young son that one day Jesus would come to get him to take him to meet His own father and then he found himself saying, Tadan, if Jesus
comes tonight and wants to take you, go with him!
When the time comes and Tadan leaves with Jesus to go meet His Father, the family plans to gather and celebrate Tadan’s life here. His father believes that Tadan’s mission here will be complete at that time. They desire the time to be a celebration of the hope and the life that Tadan will then
possess! They want attendees to dress cheerfully. They do not plan to wear black and don’t want anyone else to do so.
They will rejoice that Tadan will have discovered the true Infinity and Beyond!